OFCP NEWS

OFCP Golf Classic - June 26, 2026

Mon, 16 Mar 2026 15:06:07 GMT

Join Us at the OFCP Golf Classic

We are proud to announce the first Annual OFCP Golf Classic and invite our entire community to take part.

This inaugural event brings together members, supporters, families, and friends for a day built around connection, shared purpose, and support for the work we do across Ontario.

Event Details
June 26, 2026
Cardinal Golf Club
2740 Davis Dr W, King, ON L7B 0G7

Start at 9am - Registration opens at 7am

$200 per player

Includes breakfast and dinner

Prizes and on course contests

This event is about building community while strengthening the financial foundation that allows our member organizations to continue their work.

If you golf, we would love to see you there. If you know someone who does, please share this invitation.

Learn more and register here:

https://ofcpgolfclassic.ca/

Questions? Contact golfclassic@ofcp.ca

Let’s make this first Golf Classic a strong start for years to come.

Sponsorship Opportunities

IMPORTANT ANNOUNCEMENT FOR OFCP MEMBERS

Thu, 15 Jan 2026 21:54:01 GMT

OFCP funding announcement 2026

We are happy to announce that we will start accepting applications for funding from OFCP Life Enriching Activity Fund (LEAF) on February 9th, 2026 and OFCP Assistive Devices Funding Program (ADFP) on Monday, February 23, 2026.

Please visit our funding webpage for updated application forms and guidelines. Please note that ONLY updated application forms will be accepted. If you have any questions, please contact us at 416-244-9686, Ext 221 or 416-936-6007 or toll free 1-877-244-9686, Ext 221.

Anne Abbott - Creating Without Limits - An OFCP Member Profile

Tue, 04 Nov 2025 10:35:28 GMT

Meet Anne Abbott.

We’re proud to feature Anne Abbott , an accomplished Toronto artist and long-time member of OFCP. Anne paints with her right index finger, using bold colour and movement to express her experiences and emotions. Living with cerebral palsy, she has turned her passion for art into a successful business, Annie’s Dandy Note Cards and Artwork, and continues to inspire others through her creativity and advocacy.

“When I paint, I feel free. It takes me to another dimension where I can forget everything and just create.”
– Anne Abbott

Watch the full video below to discover Anne’s story, her approach to adaptive art, and how she uses her talent to promote visibility and inclusion.

Truth and Reconciliation Day

Tue, 30 Sep 2025 14:10:41 GMT

An important moment for all Canadians

Truth and Reconciliation Day is an important moment for all Canadians to reflect on the history and ongoing impacts of residential schools and colonialism on Indigenous peoples. At the Ontario Federation for Cerebral Palsy, we recognize that reconciliation requires more than words—it demands a commitment to listening, learning, and taking action to build stronger, more inclusive communities.

As an organization led by an Indigenous CEO, we are especially mindful of the importance of truth, healing, and respect. Today, and every day, we stand in solidarity with survivors, families, and communities, and we honour the resilience of Indigenous peoples. We recommit ourselves to working toward equity, accessibility, and reconciliation, guided by the values of dignity and respect for all.

OFCP’s 78th Annual General Meeting - Oct 30, 2025 - Virtual Event

Fri, 12 Sep 2025 14:52:19 GMT

Invitation to the 78th OFCP Annual General Meeting Virtual Event

WHEN: Thursday, October 30th, 2025

TIME: 11:00 am – 12:30 pm

WHERE: Online through Zoom or by telephone

To: All OFCP Lifetime and Individual Members

Dear Member of OFCP:

As a Lifetime or Individual Member of the Ontario Federation for Cerebral Palsy, you are entitled to vote at the OFCP Annual General Meeting (AGM) if you are 18 years of age and over.

If you are planning to attend, PLEASE REGISTER HERE:

https://us06web.zoom.us/meeting/register/pScfnGVCTQyvWJbc_Wj4LQ

FIRM DEADLINE to register is Friday, October 17th, 2025.

After registering, you will receive a confirmation email from Zoom containing information about joining the meeting.

If you have any questions, please contact Biswatie Oodal at 416-244-9686 x221, toll free at 1-877-244-9686 x 221 or email biswatie@ofcp.ca

Please note that only those members who register will be receiving materials for the AGM.

We look forward to welcoming you online on October 30th, 2025!

Sincerely,

Victor Gascon

Chief Executive Officer

Ontario Federation for Cerebral Palsy

2025 Nicholas Milojevic Walk ‘N’ Roll-A-Thon: Sept 6th

stevenb@ofcp.ca (Steven Beith) — Tue, 24 Jun 2025 13:38:33 GMT

Please join us for the Tenth Annual Nicholas Milojevic Walk 'N' Roll-A-Thon

Saturday, September 6, 2025
9:00 -11:00 am

www.canadahelps.org/en/charities/ontario-federation-for-cerebral-palsy/events/2025-nicholas-milojevic-walk-n-rollathon

If you are unable to attend or missed the event - You can still show support and make a donation here:

https://www.canadahelps.org/en/dn/64735

The Nicholas Milojevic Walk “N” Roll-a-Thon was inspired by this wonderful young man. Due to birth complications Nicholas had Cerebral Palsy. He fought many challenges with such strength and perseverance. No matter how difficult his day was he always had a smile for all. Without words he taught us to be more tolerant of people, to appreciate the minor things we are given and to have a better understanding of disabilities.

At an early age he took a liking to Nascar and eventually to #24 Jeff Gordon. When he heard that number and name he was so excited and just kept looking at the tv, he knew a race or a recording of a race would be played for him. He liked a few things but this was his 24/7 and he could not take his eyes off the screen and just looked for the #24 car.

He had such an infectious smile and sparkling blue eyes. From this we came up with a motto "Sunshine like your smile and blue skies like your blue eyes". Wanting all individuals with disabilities to have sunshine and blue skies in their every day.

Nicholas passed away in August of 2014 at the age of 22. His memory will be kept alive through this and other fundraising for CP. He has inspired us and we hope he inspires all of you reading this to join us in remembering him and raising funds for individuals with CP

Retirement Announcement - Cindy De Graaff, OFCP Information & Referral Specialist

Mon, 19 May 2025 09:59:41 GMT

A message from Cindy De Graaff, OFCP Information & Referral Specialist

It is with a mix of emotions that I announce my retirement from the OFCP, which will begin in June 2025.

Serving alongside so many compassionate and dedicated individuals has been a true highlight of my 20 years here. I am incredibly proud of the meaningful impact we have made together in the lives of those we serve. Reflecting on my time here, I am filled with deep gratitude for the support, collaboration, and kindness I have received from my colleagues, the Board of Directors, and the entire membership.

While I've been fortunate to work in various roles, what I cherish most is the time spent listening to our members and understanding the unique challenges they face. It has been an honour to hear your stories and work together to find a path forward. I am constantly inspired by your strength and resilience, qualities that have taught me so much about being a better advocate. Thank you for allowing me to be a part of your journey.

Although stepping away is bittersweet, I am excited to begin this new chapter and look forward to supporting the OFCP in new ways as a lifelong advocate and friend.

Thank you all for your trust, encouragement, and shared passion for making a difference. I am eager to see all the wonderful things you will continue to achieve together.

With heartfelt gratitude and warmest wishes,

Cindy De Graaff

AI and Hearing Aids

Mon, 24 Feb 2025 17:34:44 GMT

How AI Is Helping Those With Hearing Loss

From Speech Pathology Programs:

According to the World Health Organization (WHO), over 5% of the world’s population – that’s about 430 million people – require rehabilitation to address their ‘disabling’ hearing loss. The WHO predicts that by 2050, over 700 million people – or one in every ten people – will have disabling hearing loss.

AI is shaking up every field thanks to giant leaps in computer power, availability of extensive data sets, and some remarkable discoveries. This revolutionary wave is smoothly making its way into audiology, the study of hearing.

What’s driving all this change? Well, it’s all about how intelligent programs, called advanced analytics algorithms, can spot patterns in stuff like sounds, videos, and text that don’t have a clear structure. Deep Learning (DL), a really hot part of AI, handles tons of data well. It can pick out the essential bits, learn from them, and get accurate fast.

In hearing loss, AI is significantly enhancing hearing aids and creating innovative tools like real-time speech-to-text apps, making life better for those with auditory challenges. AI marks a leap in support and quality of life for individuals with hearing loss, showing that AI is improving and transforming how we assist those in need.

For more information click here: https://onlinespeechpathologyprograms.org/ai-and-hearing-aids/

OFCP 50/50 Lottery: Support a Great Cause & Win Big!

stevenb@ofcp.ca (Steven Beith) — Mon, 03 Feb 2025 16:48:47 GMT

OFCP 50/50 Lottery: Support a Great Cause & Win Big!

The Ontario Federation for Cerebral Palsy (OFCP) is excited to announce the launch of our 50/50 charity lottery—a great way to support people with cerebral palsy in Ontario while getting a chance to win cash!

Ticket Sales Open the start of every month

Draw Date will be end of each month, with an early bird draw in the middle of the month!

How It Works

When you buy a ticket, 50% of the total jackpot goes to the lucky winner, and the other 50% goes directly towards funding assistive devices and support programs for people with cerebral palsy in Ontario.

That means every ticket purchased helps someone in need—whether it’s a new wheelchair, a home accessibility modification, or specialized equipment that improves independence and quality of life.

How to Get Your Tickets

Tickets are available online at cerebralpalsy5050.ca :

�� 5 for $10

�� 30 for $20

�� 150 for $50

�� 300 for $75

After purchase, your ticket numbers will be emailed to you—no physical tickets needed!

Why Your Support Matters

OFCP has been committed to helping people with cerebral palsy for over 70 years, providing vital programs and funding for those who need it most. Proceeds from this 50/50 draw will directly support:

✅ Wheelchairs & mobility aids

✅ Home modifications (ramps, stair lifts, accessible bathrooms)

✅ Specialized hospital beds & therapy equipment

✅ Communication devices & daily living supports

Every dollar raised makes a real impact in the lives of those living with cerebral palsy.

Mark Your Calendar!

Be sure to grab your tickets early for a chance to win big while making a difference!

�� Get your tickets now at cerebralpalsy5050.ca

Thank you for your support! �� #cerebralpalsy5050

Lottery Licence # RAF1457606 issued by AGCO.

FUNDING ANNOUNCEMENT FOR OFCP MEMBERS

stevenb@ofcp.ca (Steven Beith) — Thu, 16 Jan 2025 16:14:40 GMT

Funding Applications Open Monday, Feb 24, 2025.

We are happy to announce that we will start accepting applications for funding from OFCP Life Enriching Activity Fund (LEAF) and OFCP Assistive Devices Funding Program (ADFP) on Monday, February 24, 2025. Please check back for updated application forms and guidelines. Please note that ONLY updated application forms will be accepted. If you have any questions, please contact us at 416-244-9686, Ext 221 or 416-936-6007 or toll free 1-877-244-9686, Ext 221.

Charitable Donation from Savers Value Village Charitable Giving Committee

Fri, 15 Nov 2024 23:50:06 GMT

Charitable Donation from Savers Value Village Charitable Giving Committee

A Message from Victor Gascon, President, Ontario Federation for Cerebral Palsy

On behalf of the Ontario Federation for Cerebral Palsy and CP4CP I would like to extend our heartfelt thanks to the Savers Value Village Charitable Giving Committee for the incredibly generous donation of $25,000 from the Value Village Canada Giving Fund. We were absolutely surprised and deeply touched by this thoughtful gesture.

This donation is a wonderful honor, and we are truly grateful for the ongoing, steadfast partnership between our organizations. The support that Value Village has provided to us over the years has made such a significant difference in the lives of those we serve, and this gift will undoubtedly continue to empower us as we work to support individuals with cerebral palsy and their families.

We are fortunate to have such a strong relationship with Value Village, and we deeply value the shared commitment we have to the community. The positive impact of our collaboration is immeasurable, and we look forward to continuing our work together for many more years to come.

Once again, we thank Savers Value Village Charitable Giving Committee for this incredibly generous donation and for their continued support.

Navigating Back to School Tips

Wed, 18 Sep 2024 17:16:47 GMT

Navigating Back to School with a Disability: Essential Tips for a Smooth Transition

As the new school year progresses, the blend of excitement and anxiety can be heightened for students with disabilities and their families. Transitioning back to school involves a mix of preparation, advocacy, and support. Here’s a comprehensive guide with essential tips to ensure a smooth and successful back-to-school experience for students with disabilities.

1. Know Your Rights

Understanding your rights is the foundation of a successful school experience. In Canada, students with disabilities are protected under various laws and policies, including the Canadian Charter of Rights and Freedoms and provincial human rights codes. Additionally, the Ontario Human Rights Commission, for example, provides guidance on ensuring accessible education. Familiarize yourself with these laws to understand how they apply to your situation. Knowing your rights will help you advocate effectively for the support your child needs.

Tip: Consult with local advocacy groups like the Canadian Disability Alliance to get detailed information on your rights and available resources.

2. Communicate with School Staff

Open and early communication with teachers, administrators, and counselors is crucial. Schedule meetings before the school year begins to discuss your child’s needs and any required accommodations. Clear communication ensures that everyone involved is aware of your child’s unique challenges and how best to support them throughout the year.

Tip: Use a written document to summarize the key points of your meeting, including agreed-upon accommodations and action steps. This helps ensure clarity and accountability.

3. Organize Your Supplies and Environment

Preparing your learning environment to accommodate your needs can reduce stress and improve focus. Ensure that materials are easy to access and that you have any necessary tools or technology in place. For instance, students with visual impairments may require large-print books or assistive technology. Setting these up before school starts helps create a supportive learning space.

Tip: Collaborate with your child’s teachers to make sure the classroom setup is accessible and meets their needs. This could involve adjustments like a more accessible desk arrangement or specific assistive devices.

4. Develop a Routine

A consistent daily routine helps manage time and energy effectively. Establish a schedule that includes time for schoolwork, breaks, and self-care. If medication or specific health protocols are required, integrate these into the routine as well. A well-structured day can provide stability and ease the transition back to school.

Tip: Use visual aids like calendars or planners to help your child follow their routine. This can also be a helpful tool for teachers to understand and support your child’s schedule.

5. Utilize Assistive Technology

Assistive technology can significantly enhance learning experiences. Tools such as text-to-speech software, adaptive keyboards, and other specialized devices can make academic tasks more accessible. Collaborate with your school's technology specialist to identify and learn how to use the best tools for your needs.

Tip: Request a trial period for any new assistive technology to ensure it’s a good fit before making a long-term commitment.

6. Seek Support from Peers and Mentors

Connecting with peers who share similar experiences can offer valuable support. Consider joining school clubs or groups focused on disability advocacy or student support. Additionally, mentors such as teachers, counselors, or older students can provide guidance and encouragement.

Tip: Look for online communities or local support groups where you can share experiences and gain insights from others in similar situations.

7. Practice Self-Advocacy

Developing self-advocacy skills is key to navigating school with a disability. Learn how to clearly and confidently articulate your needs and preferences. Practice discussing accommodations and adjustments and remember that it’s okay to ask for help. Self-advocacy empowers you to take control of your educational experience.

Tip: Role-play conversations with your child to help them practice self-advocacy skills in a supportive environment.

8. Prepare for Emergencies

Having an emergency plan in place is essential. Whether the emergencies involve health issues or other urgent situations, ensure that your teachers and school nurse are familiar with any specific protocols you may need. Sharing your emergency plan ahead of time helps everyone respond effectively if a situation arises.

Tip: Create a detailed emergency contact list and ensure that all relevant school personnel have access to it.

9. Stay Informed About Resources

Many schools and communities offer resources for students with disabilities, such as tutoring, counseling, and specialized educational programs. Stay informed about these resources and utilize them to address any challenges you may face. Knowing what’s available can enhance your learning experience and provide additional support.

Tip: Regularly check in with the school’s special education coordinator to stay updated on new resources and services

10. Attend school events

Take advantage of Open House, Back-to-School Night, and parent-teacher conferences to help you and your child get a feel for the school and meet the teachers, other staff, students, and families. Share the positives about working with your child, and let the teacher know about changes, events, or IEP concerns that should be considered for children in special education.

Tip: Prepare a brief introduction about your child’s needs and accommodations to share with teachers and staff during these events.

11. Prioritize Mental Health

Managing a disability can be demanding, so it’s crucial to prioritize your mental health. Incorporate activities that help you relax and de-stress into your routine. If needed, seek support from mental health professionals or school counselors to address any emotional or psychological challenges.

Tip: Encourage open conversations about mental health within the family to normalize seeking help and reduce stigma.

12. Celebrate Your Achievements

Recognizing and celebrating your successes, no matter how small, can boost your confidence and motivation. Keep track of your progress and give yourself credit for your efforts. Celebrations and positive reinforcement encourage continued growth and perseverance.

Tip: Establish a reward system for reaching goals to maintain motivation and celebrate milestones.

13. Build a Support Network

Surround yourself and your child with a supportive community. Connecting with other families who have similar experiences can provide valuable insights, resources, and encouragement. Explore local support groups and special education networks to find additional support and guidance.

Tip: Engage with online forums or social media groups to expand your support network and share resources with a wider community.

Returning to school with a disability involves thoughtful preparation and support. By understanding your rights, communicating effectively, utilizing resources, and prioritizing mental health, you can create a positive and successful school experience. Remember, you are not alone in this journey, and there are many tools and people available to help you achieve your goals.

We hope these tips help make this school year a positive and successful one for your family. If you found this blog useful, please share it with others who might benefit from these insights. We’d also love to hear about your experiences and strategies for a smooth back-to-school transition with a disability. Send us your stories and—your experiences might be exactly what another family needs!

The Dos and Don’ts for a Successful Trip with a Disability

Thu, 05 Sep 2024 00:55:10 GMT

The Dos and Don’ts for a Successful Trip with a Disability: A Guide to Stress-Free Adventures

Planning a vacation can be as exciting as finding a hidden treasure- if you know the map. But when you have a disability, navigating that treasure hunt can sometimes feel like navigating a maze. No more worries- with a bit of foresight and some savvy strategies, you can turn your travel plans into a smooth-sailing adventure. Here are the dos and don’ts for a successful, stressless(ish) trip:

The Dos

1. Do Determine Your Disability-Related Needs

Before booking your trip, clearly identify your accessibility needs. Consider aspects like mobility aids, specific accommodations, or any additional support you might require. Understanding these needs will help you make informed decisions and communicate effectively with service providers.

2. Do Research Accessible Destinations

Select destinations renowned for their accessibility. Look for places with:

Accessible transportation: Check for wheelchair-accessible public transit and taxis.
Wheel-friendly accommodations: Seek out hotels with accessible rooms and facilities.
Attractions with accessible features: Ensure that key attractions are equipped to accommodate your needs.

3. Do Confirm Accessibility Arrangements in Writing

Once you’ve selected your accommodations and transportation, get written confirmation of all accessibility arrangements. This includes details about room features, assistive devices, and any special services. Having written confirmation helps avoid last-minute issues and ensures that your needs will be met upon arrival.

4. Do Pack Thoughtfully – Use a List!

Create a detailed packing list to include all essentials and any specific items related to your disability. This might include:

Medical supplies: Don’t forget medications and any necessary medical equipment.
Extra batteries or chargers: For devices like hearing aids or mobility aids.
Tool kit: For minor repairs to wheelchairs or other equipment.
Medical information: Carry printed details about your condition and emergency contacts or wear a medical alert bracelet.

5. Do Communicate Your Needs in Advance

Notify airlines, hotels, and any other relevant service providers about your accessibility needs well before your trip. This can include:

Airlines: Requesting assistance with boarding and deplaning or needing specific seating arrangements.
Hotels: Arranging for accessible room features or any special services.

The Don’ts

1. Don’t Assume All Destinations Are Equally Accessible

Not all destinations are equipped to handle accessibility needs equally. Avoid making assumptions about accessibility. Do your research to ensure that the places you visit can accommodate your specific requirements.

2. Don’t Rely Solely on Online Information

While online reviews and information can be helpful, they might not always be up-to-date or accurate regarding accessibility features. Contact hotels, transportation services, and attractions directly to verify details and get the most current information.

3. Don’t Forget to Plan for Emergencies

Travel can come with unexpected challenges. Make sure you have a plan in place for emergencies. This includes knowing where the nearest medical facilities are, having emergency contacts readily available, and having a backup plan if your primary arrangements fall through.

4. Don’t Pack Unnecessarily

While it’s important to be prepared, overpacking can be cumbersome. Stick to essentials and avoid bringing items that you can easily acquire at your destination. This will help you travel more comfortably and efficiently.

5. Don’t Neglect to Review Your Travel Insurance

Ensure that your travel insurance covers any specific needs related to your disability. This might include coverage for medical emergencies, equipment repairs, or trip cancellations due to unforeseen circumstances.

By following these dos and don’ts, you’ll be well-prepared to enjoy a successful and stress-free trip. Happy travels!

Covid-19: Summer 2024 Update

Fri, 30 Aug 2024 20:57:46 GMT

Covid-19: Summer 2024 Update

Understanding the Current State of COVID-19 in Ontario and Canada: The Rise of the FLiRT Variants

Canada has seen a notable decline in COVID-19 cases over the past year, but recent developments have introduced a new twist to the pandemic narrative. A family of new subvariants, informally dubbed the 'FLiRT' variants, has emerged, prompting updates and new considerations for public health. Here’s a detailed look at the current situation:

The Rise of the FLiRT Variants:

On June 10, 2024, Public Health On tario released an update on the latest COVID-19 variant developments in their SARS-CoV-2 Genomic Surveillance report ( https://www.publichealthontario.ca/ ). Among the new variants, one particular strain within the FLiRT family, known as KP.2, is rapidly becoming dominant in Canada.

Key Details About KP.2:

Origin and Mutation: KP.2 is a subvariant of the Omicron JN.1 strain, which previously caused a surge in cases last winter. This variant features additional mutations in the virus’s spike protein, which may impact its behavior and transmission.
Prevalence: As of April 28, 2024, KP.2 accounted for approximately 26.6% of all COVID-19 cases in Canada, overtaking other JN.1 subvariants in prevalence.
Name Significance: The FLiRT name derives from specific amino acid changes in the virus's spike protein: phenylalanine (F) replaces leucine (L), and arginine (R) is replaced by threonine (T). The “I” in FLiRT was added to make the name more pronounceable and memorable.

Global Context:

The World Health Organization (WHO) reported that KP.2 began spreading globally in January 2024. According to the Centers for Disease Control and Prevention (CDC), this variant now represents over 28% of COVID-19 cases in the U.S. There are concerns that cases may rise during the summer months, with a more significant surge anticipated in the fall and winter. For more details, you can c heck the CDC COVID Data Tracker ( https://covid.cdc.gov/covid-data-tracker/#datatracker-home ).

Symptoms of the FLiRT Variants:

Sore Throat
Body Aches
Cough
Runny Nose
Shortness of Breath (especially in unvaccinated individuals or those who were infected a long time ago)

Although the FLiRT variants may have enhanced abilities to evade immune defenses, individuals who are vaccinated or have previously been infected with COVID-19 are generally expected to experience only mild symptoms. However, staying informed and updating your vaccinations remains crucial to ensure continued protection

Given the evolving nature of the virus, receiving an updated vaccine can help protect you from the newer strains and reduce the risk of severe illness.

Staying Informed and Prepared:

With the emergence of the FLiRT variants and potential for increased case numbers, it is essential to stay informed through reliable sources and follow public health recommendations. Regular updates on COVID-19 and vaccination will help ensure you are well-protected against the latest developments.

For further information and updates, refer to Public Health Ontario, the CDC, and other trusted health organizations.

Source:

A Mayo Clinic virologist explains FLiRT and why you may need a new COVID-19 vaccination - Mayo Clinic News Network ( https://newsnetwork.mayoclinic.org/discussion/a-mayo-clinic-virologist-explains-flirt-and-why-you-may-need-a-new-covid-19-vaccination/ )

Source: ‘FLiRT’ COVID-19 subvariant dominant in Canada. What to know about the strain - National | Globalnews.ca ( https://globalnews.ca/news/10482978/flirt-covid-subvariants-canada-what-to-know/ )

What to Know About the ‘FLiRT’ Variants of COVID-19 | The Transmission | University of Nebraska Medical Center (unmc.edu) ( https://www.unmc.edu/healthsecurity/transmission/2024/05/01/what-to-know-about-the-flirt-variants-of-covid-19/ )

3 Things to Know About FLiRT, the New Coronavirus Strains > News > Yale Medicine

SARS-CoV-2 Genomic Surveillance in Ontario, June 10, 2024 (publichealthontario.ca) ( https://www.yalemedicine.org/news/3-things-to-know-about-flirt-new-coronavirus-strains )

SARS-CoV-2 Genomic Surveillance in Ontario, June 10, 2024 (publichealthontario.ca) ( https://www.publichealthontario.ca/-/media/Documents/nCoV/epi/covid-19-sars-cov2-whole-genome-sequencing-epi-summary.pdf?rev=6c3782b4277a4b3fad5229ed5d1cb95b&sc_lang=en )

How to best protect yourself from the latest Covid-19 variants:

While Ontario, like other jurisdictions, have taken measures to be able to live with and manage COVID-19 for the long-term, we still need to do our part to protect ourselves and others, especially during respiratory illness season, such as the fall and winter months.

This includes using the layers of protection that we know help keep ourselves and others healthy:

staying up to date on your COVID-19 vaccines and flu shots
wearing a tight-fitting, well-constructed mask in indoor public settings, especially if you are at higher risk of severe infection
visitors and patients should follow any requirements for masking in hospitals, long-term care homes, and other health care spaces
staying home when you are sick and wearing a mask until day 10 from symptom onset
washing your hands often
covering your mouth when you cough or sneeze
regularly cleaning high touch surfaces
optimizing indoor air quality
if you are high risk, talk to your health care provider about antiviral treatment options ( https://www.ontario.ca/page/covid-19-testing-and-treatment#section-5 ) in case you get sick

For more information on how to protect yourself and others, read Public Health Ontario’s fact sheet ( https://www.publichealthontario.ca/-/media/Documents/R/2023/respiratory-viruses-protect-yourself.pdf )

Current Recommendations from Ontario.ca’s:

COVID-19 vaccinations remain a critical tool in safeguarding against the severe outcomes of COVID-19 infection, such as hospitalization and death. While vaccines may not always prevent symptomatic infections, they significantly reduce the severity of illness and the risk of developing post COVID-19 conditions, commonly known as long COVID. Here’s what you need to know about who can get vaccinated and when to schedule your doses.

Who Is Eligible for COVID-19 Vaccination?

In Ontario, COVID-19 vaccines are available to everyone aged 6 months and older at no cost. This is true regardless of citizenship, immigration status, or whether you possess an Ontario health card. If you do not have an Ontario health card, you can still receive a vaccine using alternative forms of identification, such as:

Photo Identification (if aged 18 or older): Driver’s license, Ontario photo card, or passport.
Additional Forms of ID: A piece of registered mail, pay stub, student card, library card, or government-issued ID from other jurisdictions (including expired documents).

When Should You Get Your Next Dose?

For optimal protection, it is generally recommended to wait until fall 2024 to receive your next COVID-19 vaccine dose, unless directed otherwise by your healthcare provider. This timing is intended to ensure you are well-protected during the peak circulation of COVID-19 and other respiratory viruses. Keep an eye on updates for specific vaccine recommendations as the fall season approaches.

Vaccination Recommendations Based on Prior Doses

Infants and Children (6 months to 4 years): Those with no prior COVID-19 vaccinations should receive a 2- or 3-dose series of an XBB formulation. Vaccine administrators will provide guidance on the interval between doses.
People Aged 5 Years and Older: Individuals with no prior COVID-19 vaccinations need only 1 dose of an XBB formulation.
Immunocompromised Individuals: Those moderately to severely immunocompromised who have not been previously vaccinated are recommended to receive 1 additional dose compared to the general recommendations.

Considerations for Immunocompromised Individuals

If you are immunocompromised, the timing of your COVID-19 vaccinations may vary based on your specific health condition and treatment plan. It is advisable to consult with your healthcare provider for personalized advice. Particularly, if you have undergone a hematopoietic stem cell transplant, a hematopoietic cell transplant (autologous or allogeneic), or CAR-T-cell therapy, your immunity may be compromised, and re-vaccination might be necessary.

Combining COVID-19 Vaccines with Other Vaccinations

You can receive the COVID-19 vaccine simultaneously with, or at any time before or after, other routine vaccinations. There is no need to space them out.

Consulting with Your Healthcare Provider

You should contact your healthcare provider if you have any questions about receiving the COVID-19 vaccine, especially if:

You are immunocompromised due to disease or treatment.
You have experienced a severe allergic reaction to a COVID-19 vaccine or have allergies to vaccine components.

If You’ve Had COVID-19

Even if you have previously contracted COVID-19, vaccination is still recommended. Infection alone offers some protection, but combining this with vaccination enhances your immune response and helps prevent reinfection. Remember, even if you’ve recovered from COVID-19, you can still contract the virus again, spread it to others, and potentially experience severe outcomes.

How to Get Vaccinated:

While there are a few mass vaccination clinics left the majority can now obtained at your local pharmacy. To get a list of pharmacies in your area, please use the pharmacy locator offered by Ontari o.ca at participating pharmacies ( https://www.ontario.ca/vaccine-locations/ )

t he COVID‑19 vaccination portal ( https://www.ontario.ca/book-vaccine/ )
the Provincial Vaccine Contact Centre at 1-833-943-3900 , available in more than 300 languages, Monday to Friday (excluding holidays) from 8:30 a.m. to 5:00 p.m. Eastern time (TTY for people who are deaf, hearing-impaired or speech-impaired: 1-866-797-0007 )
public health units ( https://www.phdapps.health.gov.on.ca/phulocator/ ) using their own booking system
participating primary care providers
Indigenous-led vaccination clinics

Source: COVID‑19 vaccines | ontario.ca ( https://www.ontario.ca/page/covid-19-vaccines#section-6 )

Protection from COVID‑19 and other respiratory illnesses | ontario.ca ( https://www.ontario.ca/page/protection-covid-19-and-other-respiratory-illnesses#section-2 )

Creating avenues for change in the industries of fitness and sport through adaptive fitness and the founding of Flex for Access

Sat, 17 Aug 2024 00:23:10 GMT

Creating avenues for change in the industries of fitness and sport through adaptive fitness and the founding of Flex for Access

Jess Silver

The idea that movement is one of the most important avenues for managing physical limitations and addressing further atrophy, should not been perceived as surprising or a newly discovered intervention, because it has been traced back to the earliest of civilizations that the human body’s physical constitution is often dependent on lifestyle and is reflected in how an individual moves. Even with this scientific fact being true, movement and fitness is unfortunately not prioritized for special populations that are comprised of individuals who have Cerebral Palsy (CP) Multiple Sclerosis (MS), Spinal Cord Injuries (SCI) and other acquired neurological disorders, infections, or diseases which cause neurological impairment. For these conditions medications are primarily administered to control localized symptoms or secondary affects of impairment and assistive devices are prescribed to assist in movement if an individual is able to use a walker, canes, or gait trainer, for example. Likewise, conventional approaches to physical and occupational therapy are applied in management, which similarly to the medication are used to control pain and where possible address aspects of impairment, but where there are gaps to accessing movement based programming, is evidently apparent in how individuals with physical disabilities and acquired injuries or conditions are accepted with hesitance by fitness industry leaders into facilities to improve their performance and address their own wellness or as educators themselves within the field.

The unfortunate fact is that largely within the industry there is still the attitudinal barrier which is exists that it isn’t ‘common’ for individuals with differences, whether physically visible or not, to be seen in fitness and sport facilities or spaces alongside their able-bodied peers. Instead, it is believed that they need some of the following and thus can’t train in a mainstream space:

- Specialized facilities with specialized equipment only to be able to address limitations.

- A specialized approach to teaching and coaching which would be too challenging to incorporate within and across the mainstream.

I created Flex for Access, the Non-Profit Organization, to achieve two main goals; the first is to allow a greater number of individuals with physical disabilities to pursue fitness within mainstream settings, and the second is for the organization to be the conduit for education of fitness professionals of their role in impacting lives positively of individuals who have challenges and also of important role that the fitness professional has in partnership with other medical professionals and practitioners. Providing the fitness professional or health practitioner with the insight that their expertise and role in the health pathway is life changing and demonstrating how it is and being able to instruct them on modifying exercises and the overall approach to programming, is most compelling and important in impacting the industry as a whole. Individuals that have physical challenges and injuries, have also commented on the fact that there is a lack of opportunity for them to be active within mainstream settings because of a lack of both infrastructural accessibility and even more importantly an informed, wholestic knowledge of fitness’ role to achieving overall wellness. Knowing this, Flex for Access’ work moves beyond creating awareness and into impacting educational structure and application of adaptive fitness and sport to health prescription. More information about the Non-Profit Organization, is available at www.flexforaccess.ca and there’s a great upcoming opportunity to engage with our work at the 4 ^th Annual Gala Fundraiser, S.O.A.R. (Sport. Opportunity. Amalgamation. Redefinition.,) on Thursday November 14 ^th . Tickets are now on sale under the News & Events tab of our website. We look forward to seeing many of you there.

Coming from within: How an informed lived experience perspective with CP impacts daily activities and belief systems or modes of practice

Sat, 20 Jul 2024 02:57:41 GMT

Coming from within: How an informed lived experience perspective with CP impacts daily

activities and belief systems or modes of practice

Jess Silver

Experiencing a situation or set of circumstances, always has an effect on one’s ideas and reactions to another situation or being in a specific environment. This is a notion in today’s society that is particularly relevant to understanding the meaning and complexity of a civic right like disability inclusion. It is for example important for both an organization or company to hire individuals with disabilities to inform the way they function and progress forward in policy development, and it is equally important for individuals with physical disabilities such as Cerebral Palsy (CP) to know that their perspectives, opinions, and expertise is considered validated and applied and that their needs are understood and addressed.

Numerous individuals with varying disabilities both visible and invisible often express the idea that they feel that their perspectives and expertise are not considered when it comes to validating changes to programming and governing policies. This notion is related to areas such as the corporate world as well as to those related to health, wellness, and fitness. Many have stated that they feel as though there aren’t resources, knowledge, or equitable opportunities to engage with fitness and sport in meaningful ways within the mainstream, specifically in Canada. The resources and programs that exist are available and more widely funded until the age of 18, but beyond that they aren’t. This poses a problem that is related to access to resources, but the other limitation is that many feel that they can’t relate to, or meaningfully engage with the programs that are available. There is a sense of urgency and realization amongst individuals that are part of special populations that there need to be opportunities for experiences in fitness created by individuals with physical disabilities for example such as CP, for those with CP but in mainstream environments. It has been recognized that having the opportunity to work with fitness professionals who have CP, for example, provides the following:

A sense of comfort due to the relatability and familiarity of the condition, adversity encountered and necessary adaptations to programming
A new perspective of possibilities and knowledge of resources, equipment and further connections within the community and larger country, or even beyond a specific country
Working 1-on-1 with a professional who has CP, for example has shown to allow clients of the professionals the opportunity to develop meaningful improvement in their emotional state (confidence, empowerment) and physical ability

Currently within society the emphasis that is placed on authenticity and creating new and meaningful social experiences, needs to translate into the realities of our every day such as those within the context or policy development, systematic policies that impact employment structures and governance and opportunities as well as systems, programs, resources, and organizations that are related to health and wellness. One of the ways to achieve and continually develop progressive programs and policies that lead to experiences like those produced by adaptive fitness, is by creating and building on platforms that include diverse and varying levels of expertise and lived experience and not perceiving this as an isolated demographic or instance where there is a need, but instead seeing and applying it as an opportunity for dynamic change.

Member Spotlight: Marie Bissetto

Wed, 05 Jun 2024 15:27:14 GMT

Member Spotlight: Marie Bissetto

Today, the OFCP is shining a light on one of our most remarkable members, Marie Bissetto! At 91 years old, Marie has led an incredible life and witnessed many changes in the way that society views and treats people with Cerebral Palsy. Thankfully, Marie has been incredibly generous in sharing her story with us.

Marie was born in 1933, delivered in her family home in Windsor, Ontario. As she explains, "At that time doctors regularly made house calls. Many families did not own automobiles. This was at the height of the depression". At three months, Marie was diagnosed with Cerebral Palsy by her family doctor. "My right arm and leg were affected (Right Hemiplegia) to the degree where I did not walk with stability until age four. At the age of four and again at twelve, I had Achilles tendon surgery at The Shriner's Children's Hospital in Montreal. I was then able to walk with only a minor limp. I had limited use of my right arm and hand". At the time, resources for children with Cerebral Palsy were scarce. "There was no services or programs for kids with CP in our area until The Red Cross started a rehab program when I was twelve".

Speaking on her experience growing up with Cerebral Palsy, Marie says that, "My childhood was pretty normal. I was able to participate in school sports, ride a bike and roller skate. I was never made to feel different by my family or school mates". After high school, "I started an office job as a Cost Clerk. At age 20 I was married. One year later our son was born. My family helped with baby care the first few weeks". However, there were challenges as a young mother with Cerebral Palsy. "Unfortunately there was none of the fancy baby equipment for the home like in later years. I had to find my own way of handling a newborn with limited use of my arm".

As time went on, "I was able to ambulate unassisted until the age of 80, when I started using a walker. I am still ambulatory today at a slower pace and need help with some of my daily routine. I am so grateful that I can continue to live and be cared for by family. I am sure that is what has contributed to my longevity".

Looking back on her extraordinary life, Marie comments that, "So many things have changed in my lifetime. Science and technology has contributed to the disabled having more surgical and equipment options that make our home easier to navigate as well as school and work". Her biggest accomplishment "is that I was able to raise a family, work and be independent for most of my life. Some of the lessons I have learned along the way is to have a positive outlook and enjoy the simple things. There were many physical obstacles I had to overcome in my life. I would tell any younger OFCP member to take each challenge as it comes using your own determination even if it is a struggle".

Reframing DEI

Wed, 01 May 2024 00:14:36 GMT

Reframing DEI: What individuals with Cerebral Palsy Would Want Others To Know About Inclusion

Jess Silver

Today’s society places a strong emphasis on inclusion, which is important to build a cohesive and progressive social structure. But in order to do so, it is imperative to understand its meaning from an informed perspective and for that ideology to account for many voices.

Corporations and other business organizations and companies are adopting policies and principles which recognize the meaning of inclusion to encompass all races and genders but when it comes to that policy or practice being pertinent to individuals who have disabilities; the matter becomes a multilayered one. It is complex because there are numerous gaps which are unaddressed, or individuals aren’t treated equitably, or even considered to be part of the conversation or implementation of principles and policies, or practices.

It has always been true and known that in order to truly execute something authentically it is most important to involve individuals with lived experience. Society develops its understanding of disability from media and other socially acceptable outlets of information and medical sources of authority, and medical professionals along with advances of science allow the definition to progress, but along with that social and attitudinal perspectives, must as well. Generally society knows these facts about Cerebral Palsy as a condition: it is neurological and is the most common condition babies are born with. It is multifactorial meaning that it affects an individual in different ways, i.e., through physical and cognitive motor function, and impacts gait (walking), balance, movement coordination and fluidity, and execution of independent movement and can also impact cognition and speech, but what is important to understand is, that every individual is impacted in unique ways, and the way that one feels can change even within one day, but it is not a progressive condition.

There are numerous facts and truths about the reality of living with CP that individuals who live with it, would want others to know. Some of these include:

Developing and implementing inclusive policies and practices requires the involvement of individuals with a disability like CP, for example.
It’s imperative to communicate with individuals who have CP to learn about their personal definitions and perspectives of inclusion, in order to know how to evaluate commonly held perceptions which establish policies
Many individuals feel excluded from society because of discrimination, a lack of resources, infrastructural accessibility, and a lack of or systematic gaps in providing them with assistance and support.
A fact that is true about many individuals who live with CP, is that they are very intelligent and both academically and professionally qualified and hold positions within lucrative industries or could be assets to many companies.

When one engages in conversation with individuals who have disabilities, what those individuals want others to understand and apply to how things are done systematically across professional fields and industries, is that any form of disability, including CP, should not be perceived as limiting, but as an asset to an organization, company, corporation, academic and or government institution. If an individual is qualified for a role within a company, they should not be questioned on the basis of their disability on whether they are hired or not. Inclusion is not to be achieved solely to comply with a policy or law, it is a human right and should be approached as such, and integrated into moral and human rights codes and policies authentically considering, accounting for, and balancing many perspectives, needs, ideas and people. To truthfully understand DEI is to uphold these beliefs and actions, evaluating how they influence the progression of policies, governance, and practices.

Complete Access to Justice Survey

Sat, 20 Apr 2024 19:46:20 GMT

Access to Justice Project:

ARCH Disability Law Centre is leading a research project to better understand the experiences that people with disabilities have while using federal programs, courts, and tribunals in Canada. We want to understand barriers that make it more difficult to use federal programs, courts and tribunals. We also want to understand what makes federal programs, courts and tribunals more inclusive and accessible for people with disabilities.

The results from this research will be included in a report that ARCH is writing for Accessibility Standards Canada. In the future, this report might be used to help inform new federal accessibility standards.

For more details about the project and to access the survey, visit here: https://archdisabilitylaw.ca/access-to-justice-survey/?utm_medium=email&utm_campaign=REMINDER%20-%20Complete%20Access%20to%20Justice%20Survey%20%20RAPPEL%20-%20Complter%20lenqute%20sur%20laccs%20%20la%20justice&utm_content=REMINDER%20-%20Complete%20Access%20to%20Justice%20Survey%20%20RAPPEL%20-%20Complter%20lenqute%20sur%20laccs%20%20la%20justice+CID_21138729ba1aa85754130d30a7af70c9&utm_source=Campaign%20Monitor&utm_term=Details%20about%20the%20Project

Informed, Educated & Empowered

Thu, 14 Mar 2024 19:29:53 GMT

Informed, Educated & Empowered: What Do We Know About Cerebral Palsy and Where

Our Knowledge Should Lead Us From Awareness To Action

Jess Silver

Both the delivery and receipt of medical diagnosis is overwhelming and daunting. For both the medical professional or clinician and/ or practitioner, as well as the individual and their support system, it’s most important to understand that being informed and having a broad scope of the definition of a condition and ways to manage it, is most central.

What is known about Cerebral Palsy is that it is considered to be the most common neurological condition that babies are born with, but it can also occur later in the early stages of childhood development. It most commonly occurs because of a lack of oxygen and blood supply to the cerebral cortex, and it is non-progressive in the way of degeneration, meaning that it is not a disease or disorder that one would succumb to. According to the Journal of Pediatrics of India and an article entitled “Cerebral Palsy- definition, classification, etiology and early diagnosis”, the condition may present itself in many clinic spectra”, and a lot of the time the cause isn’t easily identifiable. It is also known that there are varying types, such as spastic diplegia, dyskinetic, athetoid and hemiplegic. Due to the fact that there are varying types and the truth that every individual is unique and has different characteristics in addition to the way that the level of impairment has impacted them, it is to be understood that across lifespan one individual’s management will also be different from another.

What most of society learns to understand about a condition that is commonly a physical disability like CP is through an experience with an individual who lives with it, or what is published through research to the mainstream, but this knowledge base could often be generalized and informed by preconceived notions. Currently our society is one that should be prompted to move from awareness to action—action that perceives a physical challenge as limiting in varying ways, but not as defining of an individual and their characteristics as a person and what they contribute to society moving forward.

It is important for the understandings of management to move from a measure of comfort and solely providing assistive equipment to support the individual to by contrast an attitude that considers the individual’s own desires for their highest quality of life along with their support networks, and one where they [the individual] are empowered to contribute new perspectives to Diversity, Equity and Inclusion (DEI) where others don’t solely check boxes stating that they know of an experience like that of an individual with CP, unless that awareness is developed through interaction with them. Prior decades in clinical research most predominantly in North America asserted interventions of orthopedics (bracing), physiotherapy, occupational therapy, spasticity management medications and surgery to be the ones most actively considered in CP management, however now it is time to shift the educational and awareness paradigm to be more non-linear one, where many unique approaches to clinical, whole-person and whole health are prioritized and where considerations of the impact of activities such as recreation, adaptive fitness and sport are more deeply understood and applied to harnessing strategies and perspectives for CP management. This March 25 th on National CP Awareness Day, lets lead from true informed awareness to create change.

Research Recruitment: Bloorview Research Institute's SwitchApp

Mon, 26 Feb 2024 21:52:04 GMT

Participate in Research!

Youth and Clinicians - Expanding digital access and employment readiness through a personalizable access technology: SwitchApp

Are you a 16 to 30 year old who uses access technologies to communicate or an OT or SLP who supports youth with complex communication needs? You might be interested in participating in this study at Holland Bloorview Kids Rehabilitation Hospital.

Please see our webpages for more information!

Youth Webpage: https://research.hollandbloorview.ca/evaluating-personalizable-access-technology-switchapp-youth

Clinicians Webpage: https://research.hollandbloorview.ca/evaluating-personalizable-access-technology-switchapp-clinicians

What is SwitchApp?

SwitchApp is an access technology that users and caregivers can set up easily at home. It recognizes the user’s words, sounds and facial movements, and uses them to control a computer or tablet. SwitchApp evolves so it can continue to recognize these cues if the user’s speech and movements change over time!

What is this study?

In this study, we would like your help testing the performance of a new version of SwitchApp. We are interested in how well SwitchApp works, how easy it is to use, and how much people like to use it. This information will help us improve the access technology for many different users.

Who can participate?

Youth between 16 and 30 years old who:
- have a motor impairment preventing you from using standard technology interfaces (e.g. mouse, keyboard, touchscreen),
- currently use an access technology (e.g., a switch or joystick) to communicate and/or write in an independent, functional, and regular manner (at least 3 times a week),
- can consistently control facial movements and/or produce a few keywords or sounds,
- have a caregiver, family member, or friend who will also participate.

AND

Clinicians who:
- are certified occupational therapists or speech language pathologists,

- have at least 1 year of experience supporting the youth described above,

- have at least 1 year of experience supporting access technologies and high-tech augmented and alternative communication and/or writing aids.

What’s involved?

For Youth:
1. Three visits to Holland Bloorview to personalize and test how SwitchApp works. You will use it to complete employment-related tasks (e.g., opening programs on a computer, typing a short text) (1-2 hours),

2. A follow-up interview to talk about your feedback and opinions of SwitchApp (45 mins).

For Clinicians:
1. One visit to Holland Bloorview to fill two questionnaires, and test SwitchApp by setting up and personalizing it (1.5-2 hours),

2. A follow-up interview to talk about your feedback and opinions of SwitchApp (45 mins).

If you think this might be interesting to you or someone you know, or if you have any questions, please feel free to contact our research team:

Fanny Hotzé

PRISM Lab, Bloorview Research Institute

fhotze@hollandbloorview.ca

416-425-6220 ext. 6459

Creating a Newfound Lens for the Management of Cerebral Palsy (CP): What Clinicians and Medical and Health Professionals Should Know About Adaptive Fitness and Sport

Wed, 21 Feb 2024 02:26:58 GMT

Jess Silver

A diagnosis of Cerebral Palsy (CP) is both complex and multifaceted for every person who is part of what is often referred to as the care pathway; it is complex and diverse for the clinicians to understand and to suggest interventions for management, because it is uniquely presented in each individual, and it is even more challenging for the individual with the condition to navigate through as well as for their support system. One of the aspects that make knowing what to do when, in order to manage it, most challenging is, the fact that conventional approaches to therapy measure specific motor and muscular function and milestones in accordance with the GMFCS 1-5 scale and in addition to this in North America, and specifically Canada; the system of health governance puts limitations on access to therapies and technological interventions. One of the most important ideas that one should understand in order to manage CP across lifespan is to take a broad-spectrum approach to learning of interventions and further to that, applying them.

Recent research has shown that there is an increased level of attention that needs to be allocated to the patient's personal experience, needs and perspective in order to successfully help them learn about different and new approaches to managing CP. A qualitative study from the Journal of Disability and Rehabilitation entitled Perspectives of children and adolescents with Cerebral Palsy about involvement as research partners by C. Cavens, C. Imms et al. stated that, “Children and adolescents with cerebral palsy have the opportunity to influence research that directly impacts them. They also are interested in research partnerships that foster flexibility and open communication.”

Understanding adaptive fitness and sport as novel ways to manage CP, presents the individual with more diverse ways to be active, promotes independence and allows for them to excel at other things in their life. It’s important first to define adaptive fitness both for individuals and clinicians and practitioners, in order to meaningfully understand its role in amplifying quality of life. Practicing adaptive fitness can be defined as an approach to exercise that considers and accommodates the needs of individuals with varying abilities, whether the limitations are physical, cognitive, or multifactorial in nature.

It is most effective in addressing varying needs when it is helpful to be done consistently in conjunction with other therapeutic treatments (physiotherapy, chiropractic care, massage or FST and sport skill- based training.)

The fundamental overarching principle that clinicians and medical professionals should apply to how they perceive the management of CP, is that it is crucial for the programming to both address the individual’s limitations to achieve progressive improvement, but also to challenge the client or participant to engage in multi-plane movements, and aspects of mental toughness techniques, when applicable.

Individuals that have CP should aim to understand and approach managing their condition by combining different therapeutic and medical approaches. Engaging in adaptive fitness one would be able to:

Work with a professional on individualized goals that are both skill and functional movement based
Be in an environment where they would be challenged, both by exercise equipment and through the programming
Learn of fundamentals to building mental toughness and resilience that are central to developing physical improvement and building increased independence.

The most important aspect of Cerebral Palsy for both a clinician, therapeutic practitioner, and the individual alike to know, is that the condition is not neurodegenerative but the way that it is presented is different for everyone and it changes over time as an individual ages. In order for one to have the highest, most fulfilling quality of life, it is most important to have or to develop a strong and cohesive network of multidisciplinary professionals that are qualified in working with them for rehabilitation and adaptive fitness. The concept that adaptive fitness presents one with a more diverse and engaging way to manage CP is what also creates the opportunity for developing meaningful potential throughout life.

Anne Abbott: Feelings of Invisibility, An intimate portrait of an invisible woman

Fri, 16 Feb 2024 20:37:00 GMT

https://vimeo.com/856247704

"Feelings of Invisibility," an award-winning short documentary by Charmaine Lewis, offers an intimate glimpse into Anne's remarkable journey. Through her art, Anne challenges societal misconceptions about disability, exploring themes of visibility, love, loss, and the universal desire for connection. Her artwork and her story serve as powerful reminders of the capacity for the human spirit to overcome and flourish.

Today, Anne Abbott is not only a celebrated artist but also a vibrant advocate for those with communication disabilities. With every piece of artwork sold at St. Lawrence Market or through her business, Annie’s Dandy Note Cards and Artwork, Anne reiterates her message of hope, inclusivity, and the transformative power of self-expression.

Join us as we celebrate Anne Abbott, her art, her activism, and her indomitable spirit. Her journey reminds us that creativity knows no bounds and that every voice, no matter how it speaks, deserves to be heard.

A message from Anne:

My name is Anne Abbott. I was born in 1958 with a condition called Cerebral Palsy. However, it was a year later, just after I had my first birthday, when the doctors officially confirmed that I, indeed, had C.P.

I’ve often wondered if the delay of the diagnosis was due to the kind of kid I was. My mother used to tell me that right from the very start I had such incredible determination and endless energy.

On the day of my christening, I consistently played with the pages of the Bible and the minister’s cross. At the doctor’s office, on the day he was attempting to tell my mother that I had Cerebral Palsy, I kept trying to pull away from her grip in order to grab a pen from the desk between them. The doctor, exasperated, asked my mother, “Where does she get her determination from? You, or her old man?”

As a toddler, during nighttime prayers, my mother would always say, “Please, God, help Annie walk and talk.” It was here that I would move my legs under the covers in a running motion, signalling to my mother that I wanted her to add, “and run and play.” I wanted to run and play just like my brother and his friends did. Certainly, I was included in all of their games, but I wanted to climb trees and get skinned knees myself.

I had so many dreams and schemes for the future when I was a child. I wanted to be a doctor, an actress, a dancer, a writer, an artist. I wanted to move out when I was older, get married and have children of my own - just like everyone else!

Sadly, though, as time went by, perhaps because of societal ableism or my own teenage self-loathing, I didn’t follow through with a lot of my dreams.

And yet, my determination and energy have never wavered in the things that truly matter to me. Art and writing were, and are, of the utmost importance. As a person who is nonverbal, expressing myself has been absolutely crucial to my survival and psyche. By communicating my thoughts and feelings, upon either canvas or tablet, I feel understood and heard.

If you have watched the biographical short documentary “Feelings of Invisibility “(produced by Charmaine Lewis), you’ll know that. I did move out on my own and married a wonderful man named Rob. Oh yes, and I started my own art business called Annie’s Dandy Note Cards and Artwork. I’ve been selling my artwork every Saturday at the St. Lawrence Market for 22 years. I’m also a member of the Canadian Communication Access Alliance, which focuses on the rights of people with communication disabilities.

Going Into 2024 With OFCP

Wed, 17 Jan 2024 17:48:51 GMT

As we say goodbye to 2023 it is with a renewed sense of optimism and commitment that we welcome 2024.

This year, the OFCP has seen significant changes in the lives of our members. Covid seems both a distant past and also an ever present reality. Our members have proven their resiliency and strength in managing changes in their school, employment, service provision and sometimes even their own health.

In 2023. The OFCP funded over 192 of our members, allocating funds that allowed them access to mobility and adaptive equipment, as well as $74,331 of funds dispensed for life enriching activities. These dollars were essential to enabling members to remain independent, active and feeling safe.

Throughout the year, charities continued to face the challenge of having to do more with less. Rising food costs, housing increases and the cost of living sometimes makes it difficult to donate to any charity. If a monetary donation is too difficult, we ask our donors to consider donating their used clothing to cp4cp, which is our household pick up services organization. Every dollar raised goes to supporting our members. It is a wonderful way to support our purpose, while decluttering and feeling good about your space!

As we move into 2024, the OFCP is looking forward to continue supporting our members in supporting independence, inclusion, choice and full integration of all persons with cerebral palsy.

Sincerely,
Bobbi Moore, President

A Message From Bobbi Moore, OFCP President

Thu, 21 Dec 2023 22:27:30 GMT

Hello,

My name is Bobbi Moore. I am the President of OFCP (Ontario Federation For Cerebral Palsy). Today, I write to you as a member of the organization.

OFCP has been a well-known charity for many years. It is a very important part of the lives of many people with cerebral palsy and their families. OFCP provides information and counsel to parents that have a child with cerebral palsy. Parents can expect a welcoming and supportive environment where they can get valuable information that will assist and support themselves and their child.

We offer a number of funding opportunities as well. When there is a need for equipment or home modifications that aren't covered by any other service, OFCP will aid in providing assistance. We also have a funding source called The Life Enriching Activity Fund, known as LEAF. It can be used for any opportunity that would help to enrich the life of our members. It can be for school support, a fun activity, or even hiring an attendant to go on a vacation. I can speak for this fund myself. It provided me with the opportunity of a lifetime, when I was able to go on vacation and enjoy the dolphin experience of my dreams. It meant more to me than I can say.

OFCP also provides awards and scholarships to people that have dreams of furthering their education and people that are providing exemplary service to those with cerebral palsy.

I am proud to be a member and to be the President of this very important organization.

There are many ways to help our organization continue this very important work. It is my hope that you will consider donating funds, gently used items, clothes, or even your time as a volunteer. This will go a long way in assisting our wonderful organization, so that it can continue on for many more years, enriching the lives of people with cerebral palsy and their families. I thank you very much for considering this request.

Sincerely,

Bobbi Moore, President

As we approach the end of the year, we are gearing up for new initiatives and programs that will further enhance our ability to provide vital support and resources to those in need. Your contribution, no matter the size, will make a meaningful difference in the lives of our members. Together, we can create a more inclusive and supportive community for individuals with cerebral palsy and their families. Donate Now: https://www.ofcp.ca/donate-to-ofcp

Ontario Federation For Cerebral Palsy
1-877-244-9686 (Ontario only)
info@ofcp.ca
4211 Yonge Street, Suite 316 Toronto, Ontario M2P 2A9

MyStory Project is a research study that is taking place at McMaster University

brittany@brandsociety.ca (Brittany Monaghan) — Mon, 23 Oct 2023 15:10:16 GMT

The MyStory Project is a research study that is taking place at McMaster University. We are looking for adolescents and young adults (age 13-30) with Cerebral Palsy to help us study the physical health, mental health, and overall well-being of this population. The study consists of a series of questionnaires that can be completed from home. You will receive a $20 gift card for each set of questionnaires that you complete.

If you are interested in hearing more about the MyStory Project, please click on the link below to view the study flyer. You can also contact the Research Assistant, Sarah Hopmans, for more information, 905-525-9140 ext. 27854, hopmansn@mcmaster.ca.

Thank you!

https://canchild.ca/system/tenon/assets/attachments/000/002/614/original/MyStory-Phase_3.pdf

RR18

Children and Teens in Charge of their Health: A feasibility study of solution-focused coaching to foster healthy lifestyles in children and young people with physical disabilities –Parent Pilot

brittany@brandsociety.ca (Brittany Monaghan) — Mon, 23 Oct 2023 15:10:14 GMT

Do you want to support your child in fostering a healthy lifestyle? We want to know whether solution-focused coaching with parents can help young people with physical disabilities stay active and eat healthily. Participate in the study where you will get 6 months of solution-focused coaching and let us know what you think!

Who can participate?

Parents of children and youth between 10 –18 years
Your child has cerebral palsy or spina bifida
Your child can physically move some part of their body on their own with or without a mobility device
You can communicate in English
You have home internet connection

What’s involved?

You will receive solution-focused coaching for 6 months that includes 1 in home visit and 7 online coaching sessions (up to 1 hour per session)
Complete questionnaires and an interview at the end of the study on your experience
You will receive a booklet on healthy eating and physical activity

For more information or to enroll in the study, please contact Toni Lui, Research Coordinator at tlui@hollandbloorview.ca or 416-425-6220 ext. 3072.

RR26

Environmental factors that may be associated with choices of spelling and/ or graphic symbol use during communicative interactions

brittany@brandsociety.ca (Brittany Monaghan) — Mon, 23 Oct 2023 15:08:48 GMT

You are invited to participate in a Queen’s university research study “Environmental factors that may be associated with choices of spelling and/ or graphic symbol use during communicative interactions”. Queen’s University is looking for adolescents with physical disability (who have difficulty manipulating objects) and who use AAC. You are invited to participate in this research study if you:

Use AAC
Have a physical disability
Are between 10-19 years of age
Use picture symbols and are learning how to spell (using some combination of both)

The researchers want to learn about how people who use AAC make decisions whether to use pictures or to use alphabet board to communicate. We want to learn from you and other people who use AAC, in order to help others to become literate. Participating in this study involves two to three visits either at your home or at Queen’s University or alternatively, if you prefer, you these sessions can occur online via zoom. You will be speaking with your caregiver on certain topics (e.g. your favourite TV show). The visits will be audiotaped and videotaped. Each visit will be no longer than 60 minutes. The researcher will be asking you why you use spelling or picture symbols during your communication with your caregiver.

There is a $100 honorarium for participating in this research study. Please contact Paulina Finak at 18pmf@queensu.ca or Dr. Batorowicz at beata.batorowicz@queensu.ca

For more information click here.

RR35

Investigating physiological risk factors and mental health in children with CP

Mon, 28 Aug 2023 16:07:56 GMT

Do you have a child with cerebral palsy between the ages of 8 and 18?

Dr. Laura Brunton and the CHEaR Lab at Western University are recruiting for an exciting study on mental health in youth with cerebral palsy. You can now participate in this study entirely from your home!

For more information or to participate, please contact the CHEaR Lab at chearlab@uwo.ca .

Facebook page https://www.facebook.com/CHEaRLabUWO

Website: https://chearlab.ca/

RR31

https://is.gd/cppain

Research Study - Online Self-determination Toolkit for Youth with Disabilities

Mon, 28 Aug 2023 15:59:01 GMT

The Holland Bloorview Kids Rehabilitation Hospital / Bloorview Research institute is looking for feedback on an On-line Self-determination Toolkit for youth with disabilities.

We are looking for feedback on an online self-determination toolkit for youth with disabilities. Please consider participating in our research study: https://www.hollandbloorview.ca/partners-enhancing-healthy-and-productive-work-young-men-and-women-disabilities-simulation-and-3

Participants will receive a small token of appreciation. If you are interested in participating in this study or have additional questions, please contact Hiba Ahmed at hahmed@hollandbloorview.ca or 416-425-6220 x6362 with your interest, and they will get back to your shortly. Contacting us does not obligate you to participate in the study.

RR33

https://is.gd/cppain

Living with Cerebral Palsy: Pain Survey for Families

Mon, 28 Aug 2023 14:50:51 GMT

Do you have a child (<18 years old) living with cerebral palsy? Or are you younger than 18 and living with cerebral palsy?

Families of children and adolescents living with Cerebral Palsy are invited to participate in an online study to better understand the CP pain experience. Parents, children/adolescents living with CP, and sibling(s) are all encouraged to partake! Interested family members can complete the online consent form and will receive a survey access code shortly after their consent form is submitted. For more information, please email cppain@iwk.nshealth.ca

https://is.gd/cppain

Federated Health Charities Kick Off Annual Charitable Giving Campaign

Mon, 28 Aug 2023 05:07:25 GMT

Federated Health Charities Kick Off Annual Charitable Giving Campaign

Federated Health Charities is a coalition of 16 provincially-based health charities in Ontario dedicated to raising funds for its members within the Ontario Public Service that will support health education and awareness, medical research, and client and patient services.

Ontario Federation for Cerebral Palsy (OFCP) has been one of the charities lucky enough to receive funds from the Federated Health Charities campaign for 27 years now.

About Federated Health Charities Corporation

Federated Health Charities Corporation is a coalition of provincially-based charities in Ontario that began in 1983 and is dedicated to raising funds for its members within the Ontario Public Service that will support health education and awareness, medical research, and client and patient services.

For more information on Federated Health Charities Corporation, please contact Sarah Wood, at (416) 327-2137 or by email at swood2@ontario.ca or visit our website at www.federatedhealth.ca .

Ontario Representation on Special Education Advisory Committees (SEAC)

javier@brandsociety.ca (javier vivanco) — Tue, 23 Aug 2022 13:23:45 GMT

IMPORTANT ANNOUNCEMENT to all parents who have a child who has cerebral palsy and is attending a school in Ontario, regarding representation on Special Education Advisory Committees (SEAC).

The Ontario Federation for Cerebral Palsy (OFCP) is a non for profit charitable organization committed to supporting people with cerebral palsy of all ages in the province of Ontario. As many of our Members are students, attending schools in your area both primary and secondary, we would like to reach out to you to share our interest regarding your potential involvement.

Each school board in Ontario is responsible for establishing Special Education Advisory Committees (SEACs) and the regulation made under the Education Act sets out the requirements for that committee.

The Special Education Advisory Committees provide important advice on special education to their local board or school authority. They are comprised of trustees and representatives of local associations that further the interests and well-being of exceptional children or adults.

Information regarding Special Education Advisory Committees

SEAC members must be qualified to vote for members of the board and must be a resident in its jurisdiction. Members appointed to represent First Nations students do not need to meet this requirement as the students are attending the board schools under a tuition agreement.

Employees of a school board are not eligible for membership on the SEAC of the board that employs them. However, they can be members of another school board SEAC as long as they are eligible to vote for members of that school board.

The OFCP has been approached by the following school boards to advise us of a possible opportunity to sit on their SEAC representing OFCP:

Kawartha Pine Ridge District School Board
Waterloo Region District School Board
Simcoe County District School Board
Hamilton Wentworth Catholic District School Board

The OFCP would be interested in knowing if there are any parents of a child who has cerebral palsy who would be interested in representing OFCP on these school boards, should opportunities for current or future representation become available. Please let us know at this email address if interested to learn more about potential involvement with the school boards. Please contact us at cathy@ofcp.ca regarding Special Education Advisory Committees (SEAC). Thank you.

Brain Disorders in Ontario Report Release

javier@brandsociety.ca (javier vivanco) — Tue, 23 Aug 2022 13:23:36 GMT

OFCP is pleased to share the final report of Brain Disorders in Ontario: Prevalence, Incidence, and Costs from Health Administrative Data.

This Report is the culmination of a two-year collaboration between the Ontario Brain Institute and the Institute for Clinical Evaluative Sciences which involved the contributions from clinicians, patients, and advocates. OFCP was very proud to be involved and to have an opportunity to contribute in this major undertaking.

Here is the link to the report:

http://www.braininstitute.ca/sites/default/files/brain-disorders-in-ontario-2015.pdf

OFCP NEWS

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Join Us at the OFCP Golf Classic

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OFCP funding announcement 2026

Anne Abbott - Creating Without Limits - An OFCP Member Profile

Meet Anne Abbott.

Truth and Reconciliation Day

An important moment for all Canadians

OFCP’s 78th Annual General Meeting - Oct 30, 2025 - Virtual Event

Invitation to the 78th OFCP Annual General Meeting Virtual Event

2025 Nicholas Milojevic Walk ‘N’ Roll-A-Thon: Sept 6th

Please join us for the Tenth Annual Nicholas Milojevic Walk 'N' Roll-A-Thon

Retirement Announcement - Cindy De Graaff, OFCP Information & Referral Specialist

AI and Hearing Aids

How AI Is Helping Those With Hearing Loss

OFCP 50/50 Lottery: Support a Great Cause & Win Big!

OFCP 50/50 Lottery: Support a Great Cause & Win Big!

FUNDING ANNOUNCEMENT FOR OFCP MEMBERS

Funding Applications Open Monday, Feb 24, 2025.

Charitable Donation from Savers Value Village Charitable Giving Committee

Navigating Back to School Tips

The Dos and Don’ts for a Successful Trip with a Disability

Covid-19: Summer 2024 Update

Creating avenues for change in the industries of fitness and sport through adaptive fitness and the founding of Flex for Access

Coming from within: How an informed lived experience perspective with CP impacts daily activities and belief systems or modes of practice

Member Spotlight: Marie Bissetto

Member Spotlight: Marie Bissetto

Reframing DEI

Reframing DEI: What individuals with Cerebral Palsy Would Want Others To Know About Inclusion Jess Silver

Complete Access to Justice Survey

Informed, Educated & Empowered

Research Recruitment: Bloorview Research Institute's SwitchApp

Creating a Newfound Lens for the Management of Cerebral Palsy (CP): What Clinicians and Medical and Health Professionals Should Know About Adaptive Fitness and Sport

Anne Abbott: Feelings of Invisibility, An intimate portrait of an invisible woman

Going Into 2024 With OFCP

A Message From Bobbi Moore, OFCP President

MyStory Project is a research study that is taking place at McMaster University

Children and Teens in Charge of their Health: A feasibility study of solution-focused coaching to foster healthy lifestyles in children and young people with physical disabilities –Parent Pilot

Environmental factors that may be associated with choices of spelling and/ or graphic symbol use during communicative interactions

Investigating physiological risk factors and mental health in children with CP

Do you have a child with cerebral palsy between the ages of 8 and 18?

Research Study - Online Self-determination Toolkit for Youth with Disabilities

The Holland Bloorview Kids Rehabilitation Hospital / Bloorview Research institute is looking for feedback on an On-line Self-determination Toolkit for youth with disabilities.

Living with Cerebral Palsy: Pain Survey for Families

Do you have a child (<18 years old) living with cerebral palsy? Or are you younger than 18 and living with cerebral palsy?

Federated Health Charities Kick Off Annual Charitable Giving Campaign

Federated Health Charities Kick Off Annual Charitable Giving Campaign

About Federated Health Charities Corporation

Ontario Representation on Special Education Advisory Committees (SEAC)

IMPORTANT ANNOUNCEMENT to all parents who have a child who has cerebral palsy and is attending a school in Ontario, regarding representation on Special Education Advisory Committees (SEAC).

Brain Disorders in Ontario Report Release

Reframing DEI: What individuals with Cerebral Palsy Would Want Others To Know About Inclusion

Jess Silver